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Indigenous Health: Ethics and Research

Ethics and Research

Bioethics for Clinicians: 18 Aboriginal Cultures: http://www.cmaj.ca/content/163/7/845.full 

Ethics of Aboriginal Cultures: http://www.naho.ca/jah/english/jah01_01/journal_p98-114.pdf 

Indigenous Peoples' Health Research Center: The Ethics of Research Involving Indigenous 

Indian and Norther Affairs Canada Appendix E: Ethical Guidelines for Research

Saskatoon Aboriginal Women’s Health Research Committee: Ethical Guidelines for Aboriginal Women's Health Research

Saskatchewan Health Research Foundation's Community Engagement Workbook. Chapter 9: Research Involving the First Nations, Inuit and Metis Peoples of Canada 

Challenges and Rewards of Health Research in Northern, Rural and Remote Communities, Annals of Epidemiology, 18 (6), 2008.

Articles

Absolon, K., & Willett, C. (2004). Aboriginal research: Berry picking and hunting in the 21st century. First Peoples Child and Family Review, 1(1), 5–17.

Andrews, M. M. (2008). Global leadership in transcultural practice, education and research. Contemporary Nurse: A Journal for the Australian Nursing Profession, 28(1-2), 13 – 16.

Andrews, M., Backstrand, J. R., Boyle, J. S., Campinha-Bacote, J., Davidhizar, R. E., Doutrich, D., … Zoucha, R. (2010). Theoretical basis for transcultural care. Journal of transcultural nursing, 21(S1), 53S – 136S. doi:10. 1177/1043659610374321

Bastida, E. M., Tseng, T. S., McKeever, C., & Jack, L. Jr. (2010). Ethics and community-based participatory research: Perspectives from the field. Health Promotion Practice, 11(1), 16 – 20.

Blumenthal, D. S. (2011). Is community-based participatory research possible? American Journal of Preventive Medicine, 40(3), 386 - 389. doi:10.1016/j.amepre.2010.11.011

Bomar, P. J. (2010). Community-based participatory nursing research: A culturally focused case study. Japan Journal of Nursing Science, 7 (1), 1–8. doi:10.1111/j.1742-7924.2010.00145.x

Canadian Nurses Association. (2008). Code of ethics for registered nurses. Ottawa, ON: Author..  

Canadian Institutes of Health Research Natural Sciences and Engineering Research Council of Canada Social Sciences and Humanities Research Council of Canada. (2010). Tri-Council Policy Statement for Ethical Conduct for Research Involving Humans. Ottawa, ON: Author.

Castleden, H., Morgan, V. S., & Lamb, C. (2012). “I spent the first year drinking tea”: Exploring Canadian university researchers’ perspectives on community-based participatory research involving Indigenous peoples. The Canadian Geographer, 56(2), 160–179. doi:10.1111/j.1541-0064.2012.00432.x

Chinn, P.L. & Kramer, M. K. (2011). Description and critical reflection of empiric theory. In P. L. Chinn & M. K. Kramer (Eds), Integrated knowledge development in nursing (8th ed.)(pp. 184 – 205). St. Louis: Elsevier-Mosby.

Douglas, M. K., Kemppainen, J. K., McFarland, M. R., Papadopoulos, I, Ray, M. A., Roper, … Hsiu-Min, T. (2010). Research methodologies for investigating cultural phenomena and evaluating vengeance. Journal of transcultural nursing, 21 (supplement), 373S – 405S. doi: 10. 1177/10436596103979.

First Nations Centre. (2007). OCAP: Ownership, Control, Access and Possession. Ottawa, ON: National Aboriginal Health Organization.

Flicker, S. (2008). Who benefits from community-based participatory research? A case study of the Positive Youth Project. Health Education & Behavior, 35(1). 70 – 86.

Freire, P. (2009). Pedagogy of the oppressed: 30th anniversary edition. M. B. Ramos (Trans.). New York & London. Continuum.

Gaventa, J., & Cornwall, A. (2004). Power and knowledge. In W. K. Carroll (Ed.), Critical strategies for social research (pp.320 – 337). Toronto, ON: Canadian Scholars Press.

Green, L. W., & Mercer, S. L. (2001). Can public health researchers and agencies reconcile the push from funding bodies and the pull from communities? American Journal of Public Health, 91(12), 1926 – 1929.

Hergenrather, K. C., Geishecker, S., McGuire-Kuletz, M., Gitlin, D. J., & Rhodes, S. D. (2010). An introduction to community-based participatory research. Rehabilitation Education, 24(3 & 4), 225 – 238.

Israel, B A., Schulz, A. J., Parker, E. A., Becker, A. B., Allen, A. J., & Guzman, J. R. (2008). Critical issues in developing and following CBPR principles. In Minkler, M., & Wallerstein, N. (Eds.), Community-based participatory research for health: From process to outcomes (2nd ed., pp. 47 - 66). San Francisco, CA: Jossey-Bass.

Kamberelis, G., & Dimitriadis, G. (2011). Focus groups: Contingent articulations of pedagogy, politics, and inquiry. In Denzin, N. K. & Lincoln, Y. S. (Eds.), The SAGE handbook of qualitative research (4th ed., pp. 545 - 562). Los Angeles, London, New Delhi, Singapore, & Washington, DC: Sage.

Kemmis, S., & McTaggart, R. (2005). Participatory action research. In N.K. Denzin & Y.S.Lincoln (Eds.), The Sage handbook of qualitative research (3rd ed.) (pp. 559-603).Thousand Oaks, London, & New Delhi: Sage.

Lincoln. Y. S., Lynham, S. A., & Guba. (2011). Paradigmatic controversies, contradictions, and emerging confluences, revisited. In Denzin, N. K. & Lincoln, Y. S. (Eds.), The SAGE handbook of qualitative research (4th ed., pp. 97 – 128). Los Angeles, London, New Delhi, Singapore, & Washington, DC: Sage.

Minkler, M., & Wallerstein, N. (2008). Introduction to CBPR: New issues and emphases. In M. Minkler & N. Wallerstein (Eds.), Community-based participatory research for health: From process to outcomes (2nd ed., pp. 5 – 19). San Francisco: Jossey-Bass.

Petrucka, P., Bassendowski, S., Bickford, D., & Goodfeather, V. (2012). Towards building consensus: Revisiting key principles of CBPR within the First Nations/Aboriginal context. Open Journal of Nursing, 02, 143–148. doi:10.4236/ojn.2012.22022

 Running, A., Martin, K., & Tolle, L. W. (2007). An innovative model for conducting a participatory community health assessment. Journal of Community Health Nursing, 24(4), 203 – 213.

Streubert, H. J. (2011a). Action research method. In, Streubert H. J., & & Carpenter, D. R. (Eds.), Qualitative research in nursing: Advancing the humanistic perspective (5th ed., pp. 300 - 321). Philadelphia: Lippincott Williams & Wilkins.  

Streubert, H. J. (2011b). The conduct of qualitative research: common essential elements. In, Streubert H. J., & & Carpenter, D. R. (Eds.), Qualitative research in nursing: Advancing the humanistic perspective (5th ed., pp. 18 - 32). Philadelphia: Lippincott Williams & Wilkins.  

Wallerstein, N., & Duran, B. (2006). Using community-based participatory research to address health disparities. Health Promotion Practice, 7(3), 312 – 323.

to outcomes (2nd ed., pp. 5 – 19). San Francisco, CA: Jossey-Bass.

Wang, C. (2006). Youth participation in photovoice as a strategy for community change. Journal of Community Practice, 14(1/2), 147 - 161.

Wang, C., & Burris, M. (1997). Photovoice: Concept, methodology, and use for participatory needs assessment. Health Education & Behavior, 24(3), 369 – 387.  

Subject Guide

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Deborah Lee
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Phone: 306-966-6019

Location: Room 122, Murray Library